marathon

5K round two!

Last night I went out for my run. I planned on running around 7pm but I didn’t make it out of the house until closer to 7:30. My goal for the evening was to do a 5k. I started off strong in the first 1k of my run, maybe too strong. I was a little more optimistic about how much I could run and over did it a lot, especially int he first 2 kilometers. I am excited to start going farther though with every run! I got some great running advice from a fellow Cystic her name is Emily and she is the main runner and operator for the charity I am working for this year the Rock CF Foundation. She is an amazing athlete and someone I admire very much, having her support and advise is a big motivator for me to keep working hard to fulfill my goals! Her advise to me was to run four days a week alternating days and to work in strength training on the in between days. SO I have been following that method with yesterday being my first full run, on off days I do push ups, crunches and planks. I am not the greatest at actual work outs, so it’s going to take some getting used to, but I know i will get better at it!

Here are the Garmin stats from my 5k yesterday. I am really proud to have my fastest mile to minute yet it’s just under 19 minutes! I need to be at least at 16 for my run in october, and i’m hoping to get it down to 12 for my run in November. It’s not going to be easy, but it’s going to be worth it!

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My goal tomorrow is to do another 5k maybe go a little farther. I don’t want to do to much to fast, and this 5k was pretty exhausting for me. I’ll keep working on it though!
Wish me luck!

 

 

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Doctors Appointment update

Yesterday I had a Doctors appointment at the University of Michigan in Ann Arbor. I am kind of sad to report that it didn’t go as well as I had hoped it would. I have been feeling really good since I’ve gotten out of the hospital and i had really anticipated my PFT scores being higher, but all in all nothing really changed. The doctor did take me off IV antibiotics though after being not hem for four weeks he said if I was going to see an improvement it would be there. My weight hasn’t increased at all, and my lugs still have a lot of crackles but the doctor seemed optimistic that getting back into the mode of running would help both of those things out a lot. 

My PFT was at 32% and I am still pretty upset about it. I really thought it was going to be at least in the mid 30’s but it just didn’t work out. 
I have to be honest I am pretty upset and disappointed. I really did everything the doctor wanted me to and I’m just not seeing positive results anymore. I am just not sure what I can do now to get the improvements that I want, and I am beginning to think that they just won’t happen at all.

Cystic Fibrosis is degenerative so I know that it is only going to get worse and at some point I will stop getting better but it is pretty fooling when you feel better but the tests say you aren’t. I just can’t help but question how long it will be before I don’t feel better either. All I can do now is just try to keep a positive outlook.

Wish me luck!

Marathon in a Year for Cystic Fibrosis

Tomorrow is a big day for those of us in the Cystic Fibrosis community because it marks the beginning of Cystic Fibrosis Awareness month! This year I am making a special dedication of all my running and walking and training efforts, I am going to raise money for the Rock Cf Foundation

I am really excited to put all of my efforts to a good use beyond just my own personal health! The Rock CF Foundation was founded by Emily Schaller, who I was fortunate enough  to know growing up because we both went to the Children’s Hospital of Michigan in Detroit. Emily has made strides to help those who have Cystic Fibrosis, and to help find a cure and she is one of my biggest hero’s and inspirations! She done some things that people would say is impossible for someone with Cystic Fibrosis and I keep a hold of her ambition and spirit as I move forward in my goal of running 26.1 miles this year. My marathon in a year goal is something that I used to think was impossible and I still have my days where it feels like years away instead of months, but keeping the right inspiration has been key to my moving forward. I can think of no better way to repay her for what she’s done for me then to support her charity and her goals.

My goal is to raise $100.00 for each mile of my marathon journey, which is a grand total of $2,600.00. I have created a crowd rise page to show my fundraising progress:

https://www.crowdrise.com/MarathoninaYear/fundraiser/marissaparks

Between now and November 16th the day of the Half Marathon I will accepting donations on behalf of the Rock CF Foundation to help complete the second part of my Marathon in a Year goal. All donations big and small around appreciated! I wish I could show my appreciation and send you all a big hug! I know that there are going to be some hard days between now and November. I haven’t gone longer then three months without IV antibiotics in a long time, but I know that together we can get through this and by the end of the year I will have done something that I thought was impossible a year ago.

Wish me luck!