disney

Lets get back in the Groove!

Today has been a fantastic day! Yesterday afternoon I was discharged from University of Michigan Hospital. Now I will still be on IV antibiotics for the next couple weeks, but thankfully I can do them from home for now. Today I was able to go for my first walk in almost a week. I was nervous that I would have a hard time breathing and that I wouldn’t even make it to the end of the road, but I went a whopping 5k. I did struggle a little so my pace was a few minutes slower then normal, but it felt really good to be out and walking again.

 

 

I received the second bit of great news when I got home from my walk. Disney has released the bib numbers for the Tower of Terror 10 mile run in October. I am not the fastest runner and I was honest when filling out my estimated finish time. I couldn’t be happier to find that I have been placed in Corral I, which is the second to last corral. Now I don’t know how long the time between corrals is, but I know that the extra couple minutes that I will get is going to be the make it or break it between my finishing or not. I may have cried from happiness when I found out that I have a serious chance of finishing now.

I plan on training hard core over the next few weeks, and it is my goal to have the minimum 16 minute mile by October for the run. My fastest minute mile so far is just under 18 minutes. I was making really good progress before I got sick and I am lucky to be on a fast track to getting better now. I have a long ways to go ahead of me, but I know I will cross that finish line!

As always,

Wish me luck!

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How far was that again?

I was going to share my run from tonight tomorrow, but when I got home and plugged in my Garmin and realized how far I ran I was to excited to keep it to myself!

So i set out on my run tonight with the goal of running/walking 8 kilometers which I figured would wind up being around 4 miles. I haven’t run since last tuesday which I completed a 6.1 kilometer walk/run in an hour and 12 minutes. I went on vacation with my family thursday morning and I had full intention of continuing my run schedule, but I just didn’t. I took the weekend to enjoy the company of my family, both of my grandfathers were up north with my family as well as one of my cousins, so we just had a good time enjoying each others company. I have a few pictures from the weekend and some interesting stories so I’ll write a separate post about what we do over on Lake Michigan tomorrow! Anyway back to tonights run.

My First 5 mile run!

My First 5 mile run!

I completed my 8.1 k in 1 hour and 33 minutes, which is 5.03 miles! My average mile per minute is 18:35 which has been close to my average mile per minute. I did really well this run. I never really got tired or super exhausted, in fact it was just the opposite I felt really calm and zen like. I have been running the same path for a week now and I enjoy it! I did start my run later then I had wanted to, so I didn’t get back home until after 10pm which is a little to late for me. I am not super comfortable running at night so I will be trying to start earlier for my next run/walk.

 Run Summary 7/8/2014

I have been trying to run more and more, but right now I’m really focused on making sure I can complete the full 10 mile distance for my run in October. Once I hit 10 miles I will start training more for speed. My goal is still a 12 minute mile by november, i don’t really have a goal for the October run besides the required 16 minute mile. It feels so good to know that I have reached the hallway point for my 10 mile run and that my mile per minute has improved by 3 minutes since i’ve started running.

 

After my disappointing doctors appointment a couple weeks ago this is exactly the kind of positive boost I need to keep my spirits up! I can’t wait to keep running and see how far I can go! Maybe after I complete my Marathon in a Year I will be able to run a real Marathon in a day! 

Wish me luck!

 

5K round two!

Last night I went out for my run. I planned on running around 7pm but I didn’t make it out of the house until closer to 7:30. My goal for the evening was to do a 5k. I started off strong in the first 1k of my run, maybe too strong. I was a little more optimistic about how much I could run and over did it a lot, especially int he first 2 kilometers. I am excited to start going farther though with every run! I got some great running advice from a fellow Cystic her name is Emily and she is the main runner and operator for the charity I am working for this year the Rock CF Foundation. She is an amazing athlete and someone I admire very much, having her support and advise is a big motivator for me to keep working hard to fulfill my goals! Her advise to me was to run four days a week alternating days and to work in strength training on the in between days. SO I have been following that method with yesterday being my first full run, on off days I do push ups, crunches and planks. I am not the greatest at actual work outs, so it’s going to take some getting used to, but I know i will get better at it!

Here are the Garmin stats from my 5k yesterday. I am really proud to have my fastest mile to minute yet it’s just under 19 minutes! I need to be at least at 16 for my run in october, and i’m hoping to get it down to 12 for my run in November. It’s not going to be easy, but it’s going to be worth it!

Screen Shot 2014-06-30 at 7.31.02 AMScreen Shot 2014-06-30 at 7.30.49 AM

 

My goal tomorrow is to do another 5k maybe go a little farther. I don’t want to do to much to fast, and this 5k was pretty exhausting for me. I’ll keep working on it though!
Wish me luck!

 

 

May the Fourth Be with you!

The past couple days have had there ups and downs, and I am happy to report that I have been walking! I went for a walk this past Wednesday and my Nike+ sensor just quit working on me so I made a split moment decision to buy a Garmin 110. I ordered mine through Amazon it was roughly $130.00 but I was super excited to make the investment in my running future. I received it saturday morning and of course I had to charge it and use it right away! Well after using it tonight on my longest walk yet I am pretty heart broken to report that it quit working, to say that i am disappointed is an understatement i think terms like pissed off are more accurate. I asked around for a bit before I made my purchase and everyone seemed really happy with Garmins and told me that they are really the only way to go for serious running, so I am hoping that this can get sorted as quickly and painlessly as possible. 

What am I most upset about? That all that data from my walk tonight is lost. No I did not reach my 5k goal, but I did go on my longest walk and now it is just non-existent. In all I can’t if I am more upset that this Garmin let me down, or that I feel i’ve let you down. I’m not really upset for not meeting my 5k goal, tonight I walked (with my dad) 2.15K and I was exhausted. I completely underestimated how long 5k is, so I am rescheduling that 5k goal for this coming sunday. Now that I have abetter idea of what kind of a distance I have ahead of me, I think I can accurately tackle my goal!

My bigger goal for tomorrow is to figure out what is wrong with this Garmin! Hopefully to get it on the track to working again. I don’t by myself nice things very often, I have been trying to make a change in that. It’s hard to change when you spend a lot of money on yourself and it just falls apart in front of you. I am confident it will get fixed though!

Wish me luck!

Marathon in a Year for Cystic Fibrosis

Tomorrow is a big day for those of us in the Cystic Fibrosis community because it marks the beginning of Cystic Fibrosis Awareness month! This year I am making a special dedication of all my running and walking and training efforts, I am going to raise money for the Rock Cf Foundation

I am really excited to put all of my efforts to a good use beyond just my own personal health! The Rock CF Foundation was founded by Emily Schaller, who I was fortunate enough  to know growing up because we both went to the Children’s Hospital of Michigan in Detroit. Emily has made strides to help those who have Cystic Fibrosis, and to help find a cure and she is one of my biggest hero’s and inspirations! She done some things that people would say is impossible for someone with Cystic Fibrosis and I keep a hold of her ambition and spirit as I move forward in my goal of running 26.1 miles this year. My marathon in a year goal is something that I used to think was impossible and I still have my days where it feels like years away instead of months, but keeping the right inspiration has been key to my moving forward. I can think of no better way to repay her for what she’s done for me then to support her charity and her goals.

My goal is to raise $100.00 for each mile of my marathon journey, which is a grand total of $2,600.00. I have created a crowd rise page to show my fundraising progress:

https://www.crowdrise.com/MarathoninaYear/fundraiser/marissaparks

Between now and November 16th the day of the Half Marathon I will accepting donations on behalf of the Rock CF Foundation to help complete the second part of my Marathon in a Year goal. All donations big and small around appreciated! I wish I could show my appreciation and send you all a big hug! I know that there are going to be some hard days between now and November. I haven’t gone longer then three months without IV antibiotics in a long time, but I know that together we can get through this and by the end of the year I will have done something that I thought was impossible a year ago.

Wish me luck!

You have to walk before you run

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Okay so my walk today may be nothing to brag about, but this is the first walk I have tracked. Seeing a documented time for my walk makes me excited! I finally have a way to show my progress and really compare past to present, well future pasts to future presents. I don’t have any really fancy technology that I am using, it’s just a cheap little sensor that I got from Apple. It pairs with the Nike+ iPod app, and it only cost me about $15 to order it brand new on Amazon. I haven’t tested it out a ton with this being it’s first use I did notice a couple glitchy things with it, it didn’t start tracking my walk right away and it kept resetting the pace time to zero, but that all could have been user error. I’m just really excited to be making progress! I am sure with these little devises you get what you pay for, and while I would love to buy a fitbit bracelet I just can’t see spending the money on one as a beginner.

I went on my first real walk with my Dad and his dog Bear. When I told my dad about my intentions of running a combined marathon this year he told me that he would walk and run with me. Having my dad do this with me makes me excited! We get to make progress together, even though I anticipate it taking me longer to get to the finish line I know I will make it!

Hopefully tomorrow I can go on an even longer walk. I am starting with walking to make sure that I have the lung capacity built up before I attempt any kind of faster pace movement. It doesn’t take much for me to have a coughing fit and to get winded. In the past i’ve even encountered decreased oxygen to the point that my limbs started changing colors and going numb, so I’m working on easing into it.

I am hoping that this exercise will help increase my PFT’s (Pulmonary Function Test) they’re pretty low for me and have been since around november. My PFT the last time I went in for an appointment was around 33% it would be a welcomed miracle if I could get them into the 50’s which is where they were about 2 years ago.

To hopes for progress I say, lets keep moving forward!

The Disney effect

The Mouse and

On my way to work this morning Imagine Dragons came on the radio with their song On Top of the World. A simple 3 minute song but it brought back so many memories of being at Disney. When I would drive to work I would listen to that song because it’s impossible to have a bad day after you hear it. I’d have my windows down and the radio up driving through the Magic Kingdom gates and around the look to the cast parking lot. Sometimes it would even make its way into my earphones as I walked through the lobby of the Polynesian and to the cast break room. That song is the sound track to my Disney college program. When I first heard the song come on I thought it would make me sad and miss the home land, but it did something completely different.
I felt inspired. I just met with an advisor at the University of Michigan in Flint and I have a good tracked plan to finish my Bachelor’s degree in a couple years and the song just made me realize that I will have the opportunity to return to Disney in the future. I listened to the lyrics of the song and I realized how well they coincide with my life and it brought me so much joy to know that it wasn’t just a song I listened to at Disney, it is a song that has followed my life pattern and is leading me somewhere better. I think all we can ask for as people is the opportunity to improve and life has a funny way of putting you in the position to be better if you just accept it. The song ended just before I pulled into work and it put me in such a good mood. Sometimes all you need in the morning is a good song, and everything else will follow after.

Alarm Clocks, College meetings and Super heroes… Oh my

Do you ever have those nights where you think, okay i’m going to bed early to catch up on some sleep, I don’t have to be awake until 10 tomorrow and I’m going to sleep through it all! But then you wake up around 5:30 because you sleep in the basement and someone is awake up stairs, and then against at 6:30 because you were a moron and didn’t turn your alarm off, and yet again at 7:30 because you have a panic attack that you over slept and missed your 11:30 meeting? Well it was that kind of a night for me.

After trying to calm myself down for a few minutes and go back to sleep yet again I gave up and decided to start the day. I stuck with my usual morning medication plan and decided to switch it up after that. I had been meaning to try getting into some kind of after wake up stretching routine and I thought yoga might be a good thing for me. I googled beginners yoga poses (because i’m not daring enough for anything further then that) and I started to test them out. Having Cystic Fibrosis working on breathing exercises is important for me and my past as a singer (college nothing professional) to really take the time to breathe deep and properly. I thought I would do great at yoga, i have a pretty good sense of balance and flexibility range and I’m always looking to improve both of those.

I started out with the Mountain Pose (I hope i get these names right). I found it a bit difficult to breathe in deep being so outstretched but who doesn’t love a good stretch? So I kept going and then moved into the Warrior. Now this pose is my favorite I mean probably because it’s the easiest but I also really enjoy the leg stretching too.I am going off Fitness.com for these poses and all that and they say hold each side for 1 minutes. I was doing pretty good on my first side held out the full minute but I started to notice that my breathing was way to shallow on my second one. I took a minute to compose myself before I moved on and then I gracelessly moved into the tree pose.

The tree pose was more of a challenge for me then i thought it would be. I can balance on one leg pretty well, but putting my arms up threw me off balance every time. The longest hold I had in this pose was maybe 30 seconds probably closer to 15. I couldn’t relax in this pose either, it just made me frustrated so i moved on.

I went into the triangle pose more confident because it reminded me of the warrior one and I knew I could handle it, well I thought I could. I started out with the right side and it only took a couple of seconds before I had a searing pain in my chest. Now any intelligent person would have realized they reached their cap and stopped, but I however was determined. I held each side for a full minute, and by the time I was finished my lungs thought I was being stabbed in the ribs.

Still being stubborn and refusing to give up I did a final pose called the child. I will say this one is also a the for being my favorite because it was so relaxing and soothing I could have fallen asleep like that.

After my war with yoga I felt like I had run a mile. Who knew such simple stretching could make your body so angry? As I mentioned previously I did have a meeting at 11:30 today, it was over the University of Michigan in Flint with my new advisor! I am very excited to say that I now a visual communications major at U of M. I can’t wait to start classes at the end of June and to complete my Bachelors degree and move into a serious career. After my successful meeting I returned home and met up with my mom and we went shopping for Easter dinner on Sunday. I have the joy of making a Prime Rib (my first). I think it’s safe to say (without offending my mother) that I am the chef of the house. I enjoy cooking and creating new dishes and experimenting with flavors, it is a passion for me! After all everyone needs to it right? So it should all be delicious!
I even made dinner this evening. I prepared a marinaded and grilled flank steak (another first for me) with sliced grilled potatoes and steamed green beans. I was actually surprised when it turned out to be really good, being my first flank steak I was scared it would be tough but it was fantastic!

Right from Dinner one of my good friends Travis picked me up and we headed off to the movies! He really wanted to see Captain America: The Winter Soldier and while I admit I seen it opening day. I always jump at the opportunity to see the Marvel movies in theaters, no matter how many times I’m repeating. Oh and if you haven’t seen the Winter Soldier go, drop whatever you’re about to do and go, I’ll still be here when you get back. Movies is another passion I have. I love everything from the acting to the set design and the film scoring. I was determined to be a film score writer at one point and it’s still a buried dream that I have, you never know right? I actually have a pretty extensive collection of movies though most are Disney movies, I love collecting new titles.

That was my day which all leads up to now, which i am sitting on my bed typing this out in the silence. My sore chest led me through the rest of my day, I am hoping it will subside so I can get the sleep that I lacked last night! I rightfully set my alarm for 6:30 this time though. My goal is to be to work by 8:15. The earlier I get there the more hours I can collect, and with all these Disney trips coming up I am going to need ever second I can get!

Wish me luck!

P.S: I plan to start my running/walking adventure soon, we got snow the other day and today was the first day we got over 41 again.