cystic fibrosis month

Lets turn 10k into 10 miles!

I know I made the goal to do 7k the other night, well we got storms. So I set out on my mission last night around 7pm. I got to my usual turn around point and decided I would just keep going. It wasn’t long before I had gotten back to the cross roads and I decided instead of going back the way I came, I would go around the big block.

I ended my walk with a record distance of 10 Kilometers or 6.22 miles, and it only took me 1:57. That might not be the most beautiful time, but my average pace was around a 17:50 minute mile, my fastest average yet. The best part of this long walk, was that I really enjoyed it. I finally found a great playlist that keeps me energized and motivated to keep going.

My goal for the next week is to get up to 10 miles of distance. I want to spend the whole month of September working on my pace so that I can confidently go into my 10 mile run in October.

Here are a couple pictures from my walk last night:

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This coming saturday I will be participating in the Flint Crim Festival of Races 5k walk. My dad and I will be doing it together, and I couldn’t be more excited! 

Wish me luck!

Doctors Orders!

It’s been a couple days but I am back with my update from the doctor. All in all the appointment went better then I thought it would. I was afraid that with how bad my shortness of breath has been he would put me on oxygen but my O2 stats show that even being short of breath my lungs are compensating so my oxygen saturation is hanging around 95%, which is low for me but not close to any red flags.
My PFT’s however are down even more. Let me just say when I am standing in the little PFT room and I do the breathing thing and the guy goes “awesome, you did great!” apparently he means I put in a good effort, not that my PFT was actually good. I was very disappointed when the Doctor told me that my PFT’s are now down to 31%.  The low PFT score wouldn’t bother be as much except for the fact my PFT’s haven’t increased in over 6 months. They have been going down when I am sick, and then just leveling off not increasing when I get better. Hopefully this time it will be different I can at least get back into the mid to high 30’s by mid June.
The medications I am on are Colisten and Cefepime, unfortunately for me I am already having side effects. The common side effects i’ve had previously were tingling and numbness in the mouth and teeth, but it is currently being extra tingly and numb. I am also encountering a constant bad taste in my mouth, which isn’t that bad just kind of annoying. The best side effect for the first time in nearly 3 years I can smell! By that i mean I can smell EVERYTHING. I lost my sense of smell a few years back after tackling a series of severe sinus infections. It is really strange to me to be able to smell things now, I hope this will be a permanent side effect, i like to smell things.

The worst side effect I am starting to experience is my joints locking up. When I was on IV meds in Feburary I had the same issue, it got so severe the Doctor switched my medications. Right now it’s only in my right knee and ankle, but the last time it went from both hips down and in my wrists and elbows. I can play through the pain so far, but the last time I wasn’t able to walk for about 3 days and I am really scared that it will happen again, I don’t want any permanent damage. I also don’t want to switch the medications though either, I am resistant to a lot of the medications that are normally used to treat my strand os Pseudomonas, so it would be nice to stay on the medications that are both sensitive.

I will be on the IV Antibiotics for the next 3-4 weeks, and if worse comes to worse I will restart all my training after that. I am confident that I still have enough time to make my 10 Miler in October and to reach my 13 Minute Mile pace. I’ll just have to work extra hard after this dose of medications.

I’m sure it will all work out for the better, but wish me luck!

Marathon in a Year for Cystic Fibrosis

Tomorrow is a big day for those of us in the Cystic Fibrosis community because it marks the beginning of Cystic Fibrosis Awareness month! This year I am making a special dedication of all my running and walking and training efforts, I am going to raise money for the Rock Cf Foundation

I am really excited to put all of my efforts to a good use beyond just my own personal health! The Rock CF Foundation was founded by Emily Schaller, who I was fortunate enough  to know growing up because we both went to the Children’s Hospital of Michigan in Detroit. Emily has made strides to help those who have Cystic Fibrosis, and to help find a cure and she is one of my biggest hero’s and inspirations! She done some things that people would say is impossible for someone with Cystic Fibrosis and I keep a hold of her ambition and spirit as I move forward in my goal of running 26.1 miles this year. My marathon in a year goal is something that I used to think was impossible and I still have my days where it feels like years away instead of months, but keeping the right inspiration has been key to my moving forward. I can think of no better way to repay her for what she’s done for me then to support her charity and her goals.

My goal is to raise $100.00 for each mile of my marathon journey, which is a grand total of $2,600.00. I have created a crowd rise page to show my fundraising progress:

https://www.crowdrise.com/MarathoninaYear/fundraiser/marissaparks

Between now and November 16th the day of the Half Marathon I will accepting donations on behalf of the Rock CF Foundation to help complete the second part of my Marathon in a Year goal. All donations big and small around appreciated! I wish I could show my appreciation and send you all a big hug! I know that there are going to be some hard days between now and November. I haven’t gone longer then three months without IV antibiotics in a long time, but I know that together we can get through this and by the end of the year I will have done something that I thought was impossible a year ago.

Wish me luck!