chronic illness

New Blog New Channel!

Okay this blog has been super inactive, and I have made a big switch in my focus, which prompted a new blog.

I know i know i keep changing thing.

Here are the new places you can find me posting more regularly:

Blogger: travelingBun.blogspot.com

Instagram: http://www.instagram.com/travelingbun

Youtube.com/c/marissaparks

my blog dynamic has shift from focusing on solely running and it’s expanded to be more about the educations of life with Cystic Fibrosis, and my life journey in general, which includes lots of traveling!

I’m very excited to get this started, please give me a look and if you like what you see subscribe 🙂

Wish me luck,

Marissa

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Lets get back in the Groove!

Today has been a fantastic day! Yesterday afternoon I was discharged from University of Michigan Hospital. Now I will still be on IV antibiotics for the next couple weeks, but thankfully I can do them from home for now. Today I was able to go for my first walk in almost a week. I was nervous that I would have a hard time breathing and that I wouldn’t even make it to the end of the road, but I went a whopping 5k. I did struggle a little so my pace was a few minutes slower then normal, but it felt really good to be out and walking again.

 

 

I received the second bit of great news when I got home from my walk. Disney has released the bib numbers for the Tower of Terror 10 mile run in October. I am not the fastest runner and I was honest when filling out my estimated finish time. I couldn’t be happier to find that I have been placed in Corral I, which is the second to last corral. Now I don’t know how long the time between corrals is, but I know that the extra couple minutes that I will get is going to be the make it or break it between my finishing or not. I may have cried from happiness when I found out that I have a serious chance of finishing now.

I plan on training hard core over the next few weeks, and it is my goal to have the minimum 16 minute mile by October for the run. My fastest minute mile so far is just under 18 minutes. I was making really good progress before I got sick and I am lucky to be on a fast track to getting better now. I have a long ways to go ahead of me, but I know I will cross that finish line!

As always,

Wish me luck!

Lets turn 10k into 10 miles!

I know I made the goal to do 7k the other night, well we got storms. So I set out on my mission last night around 7pm. I got to my usual turn around point and decided I would just keep going. It wasn’t long before I had gotten back to the cross roads and I decided instead of going back the way I came, I would go around the big block.

I ended my walk with a record distance of 10 Kilometers or 6.22 miles, and it only took me 1:57. That might not be the most beautiful time, but my average pace was around a 17:50 minute mile, my fastest average yet. The best part of this long walk, was that I really enjoyed it. I finally found a great playlist that keeps me energized and motivated to keep going.

My goal for the next week is to get up to 10 miles of distance. I want to spend the whole month of September working on my pace so that I can confidently go into my 10 mile run in October.

Here are a couple pictures from my walk last night:

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This coming saturday I will be participating in the Flint Crim Festival of Races 5k walk. My dad and I will be doing it together, and I couldn’t be more excited! 

Wish me luck!

I’m Back Up and Running

So I took some time off for a wedding, but this week is going to be my redemption. I got back into walking last week and I was really discouraged because I was doing poorly and on top of that I really wasn’t feeling the greatest. Well I did something crazy to force myself into being more motivated and I signed up for an 8k this weekend with one of my friends from high school. We will be participating in the Crim Festival of Races 8k walk this coming saturday. The crazy thing is I also have a baby shower to go to that afternoon it’s going to be interesting weekend. 

To get back in the swing of things I have been working on getting my distance back up. I did a 5k yesterday evening and I was disappointed when it was over an hour (1:05 to be exact). I set out this evening to do a 6k and while I didn’t meet the distance I did do 5k in 55 minutes! I was really excited to have it under and hour and shaving off 10 minutes over night wasn’t to bad. It gives me a lot more faith in my ability to complete my 10 mile run in October. 

My favorite part of my walk this evening though is that I also had my fastest mile yet. It was a glorious 16:37. It might not be an olympic pace, but thats my fastest mile yet! It is so encouraging to see my time improving, it really lifts my spirits from the poor month i’ve had. It’s definitely motivated me to keep going!

Tomorrow’s goal is 7k, which me luck!

Doctors Appointment update

Yesterday I had a Doctors appointment at the University of Michigan in Ann Arbor. I am kind of sad to report that it didn’t go as well as I had hoped it would. I have been feeling really good since I’ve gotten out of the hospital and i had really anticipated my PFT scores being higher, but all in all nothing really changed. The doctor did take me off IV antibiotics though after being not hem for four weeks he said if I was going to see an improvement it would be there. My weight hasn’t increased at all, and my lugs still have a lot of crackles but the doctor seemed optimistic that getting back into the mode of running would help both of those things out a lot. 

My PFT was at 32% and I am still pretty upset about it. I really thought it was going to be at least in the mid 30’s but it just didn’t work out. 
I have to be honest I am pretty upset and disappointed. I really did everything the doctor wanted me to and I’m just not seeing positive results anymore. I am just not sure what I can do now to get the improvements that I want, and I am beginning to think that they just won’t happen at all.

Cystic Fibrosis is degenerative so I know that it is only going to get worse and at some point I will stop getting better but it is pretty fooling when you feel better but the tests say you aren’t. I just can’t help but question how long it will be before I don’t feel better either. All I can do now is just try to keep a positive outlook.

Wish me luck!