Yesterday I had a Doctors appointment at the University of Michigan in Ann Arbor. I am kind of sad to report that it didn’t go as well as I had hoped it would. I have been feeling really good since I’ve gotten out of the hospital and i had really anticipated my PFT scores being higher, but all in all nothing really changed. The doctor did take me off IV antibiotics though after being not hem for four weeks he said if I was going to see an improvement it would be there. My weight hasn’t increased at all, and my lugs still have a lot of crackles but the doctor seemed optimistic that getting back into the mode of running would help both of those things out a lot.
My PFT was at 32% and I am still pretty upset about it. I really thought it was going to be at least in the mid 30’s but it just didn’t work out.
I have to be honest I am pretty upset and disappointed. I really did everything the doctor wanted me to and I’m just not seeing positive results anymore. I am just not sure what I can do now to get the improvements that I want, and I am beginning to think that they just won’t happen at all.
Cystic Fibrosis is degenerative so I know that it is only going to get worse and at some point I will stop getting better but it is pretty fooling when you feel better but the tests say you aren’t. I just can’t help but question how long it will be before I don’t feel better either. All I can do now is just try to keep a positive outlook.
Wish me luck!