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New Blog New Channel!

Okay this blog has been super inactive, and I have made a big switch in my focus, which prompted a new blog.

I know i know i keep changing thing.

Here are the new places you can find me posting more regularly:

Blogger: travelingBun.blogspot.com

Instagram: http://www.instagram.com/travelingbun

Youtube.com/c/marissaparks

my blog dynamic has shift from focusing on solely running and it’s expanded to be more about the educations of life with Cystic Fibrosis, and my life journey in general, which includes lots of traveling!

I’m very excited to get this started, please give me a look and if you like what you see subscribe 🙂

Wish me luck,

Marissa

Well…

It’s been a while since I’ve updated and for a good reason, nothing has been going on. My health has been pretty poor over the past month and with the cold weather outside it’s been hard for me to get going. I’ve not given up i’ve been doing short walks of 4 miles on average but they’re been slower then average.

I am hoping to get a treadmill in the very near future, I can only hope that it will give me enough time to get my 13.1 miles down. I could really use some well wishes about now!

I DID IT!

On saturday evening I participated in Run Disney’s Tower of Terror 10 Mile run. The run started in Hollywood studios parking lot and ended inside the park 10 miles later after looping through the Animal Kingdom gates and the ESPN Wide World of Sports center. I will have a video of the run coming in the next couple days, but for now I’ll write out an overview of the event!

I was placed in corral i one corral above the last one, which gave me an extra 5 minutes or so to start and get going. I was extremely nervous I had been having anxiety attacks on and off all day about the run. The week before I had just finished up a round of IV Antibiotics for Pneumonia and I was still combatting a severe sinus infection. My farthest run since being sick had only been 6.2 miles.

I decided that the best method for starting out was to take it slow. When I attempted the run last year I started by running right away and it took everything out of me in the first mile. This time I would stick to the right side and take the course easier in the beginning.

I reached mile three without a problem! It was a miracle, I had my own celebration realizing I was already going farther then I had the year before. An accomplishment in itself, and while I wasn’t confident I would finish making mile marker three was my minimum goal. The next goal was mile 5.

Mile 5 came without an issue, but I started getting nervous when I looked behind me and I could see the end of the pack.  The cast members on the side of the course let us know we were 1:15 above pace. It made me nervous because it didn’t sound like much, especially not for a walker.

Mile 6 rolled around pretty quick, but I was only 45 seconds above pace and my anxiety was growing. I knew ESPN was around mile 7 and I kept telling myself “If you can get to the trails at mile 7 you can get ahead.”

Mile 7 I was :30 seconds ahead of pace, and I could really see the balloon ladies coming up behind me. This is about the point i started to run. I took notes from Jeff Galloway and I ran in short jaunts and then would walk until I had caught my breath. I tried finding a pace that worked best so I didn’t walk to slow.

I did stop once for pictures during the run, just a quick selfie though:

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This is Alan! I went to high school with him, and we did the Fall 2013 college program together. When his CP ended he went full time at ESPN Wide World of Sports.

Mile 8 came slow I kept eating these energy chews that run disney handed out in the bags with the run bibs. They were pretty tasty. Cliff makes them I think and the flavor was Cran-Razz.

We entered park before reaching mile 9 and upon entering the park everyone was cheering because at the point you will no longer be swept, everyone is free to finish at their own pace. This is about the point I started to cry.

I started the day unsure if I would finish, and there I was approaching the end of the line successfully. I had so much anxiety about letting down the people who had been following my journey and letting myself down, but I had done it. 10 miles out of 26.1 were finish!

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It is one of the best feelings i’ve ever had. I flew home the next day, and I spent most of today sleeping and I’m still exhausted. I will be posting a video and more details about the run soon! I just had to share!

here are the run stats:

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Lets get back in the Groove!

Today has been a fantastic day! Yesterday afternoon I was discharged from University of Michigan Hospital. Now I will still be on IV antibiotics for the next couple weeks, but thankfully I can do them from home for now. Today I was able to go for my first walk in almost a week. I was nervous that I would have a hard time breathing and that I wouldn’t even make it to the end of the road, but I went a whopping 5k. I did struggle a little so my pace was a few minutes slower then normal, but it felt really good to be out and walking again.

 

 

I received the second bit of great news when I got home from my walk. Disney has released the bib numbers for the Tower of Terror 10 mile run in October. I am not the fastest runner and I was honest when filling out my estimated finish time. I couldn’t be happier to find that I have been placed in Corral I, which is the second to last corral. Now I don’t know how long the time between corrals is, but I know that the extra couple minutes that I will get is going to be the make it or break it between my finishing or not. I may have cried from happiness when I found out that I have a serious chance of finishing now.

I plan on training hard core over the next few weeks, and it is my goal to have the minimum 16 minute mile by October for the run. My fastest minute mile so far is just under 18 minutes. I was making really good progress before I got sick and I am lucky to be on a fast track to getting better now. I have a long ways to go ahead of me, but I know I will cross that finish line!

As always,

Wish me luck!

Less then a month to go now

I have been trying to think of what I would write for this post. There is less then a month until the 10 mile run, and I am beginning to feel the pressure even more. Wednesday after coming home from work I made the decision to go into the Emergency Room. I’d been sick for about a week and my condition was getting worse and I knew I needed the treatment. 

I have been in the hospital for a couple nights now. When I was first admitted my kidney’s were in bad shape, but luckily it was only from dehydration and ibuprofen use. I’ve hit a few other bumps along the road the past two days, but I am on the road to recovery.

I am not giving up hope, I still believe I can and will finish my 10 mile run in October. I had been doing around 8k everyday up until last Monday. My last few walks had been getting slower and shorter. I am confident that after I am released from the hospital I will be able to regain my 17 minute mile pace and that I will go the distance.

Between now and then I have a couple work trips, including one to Europe in a couple weeks. It’s not going to be easy, but I can do it!
Wish me luck!

The Struggle

I have been struggling for the past few weeks with my running. I took a week off because I had to travel out of state for a wedding, and running just did not make it into my schedule while I was gone. When I got home I tried going for a shorter walk just up and down my road and I really struggled to do that. I have been on a couple walks since then and each has left me feeling far worse then I had before. Over the past week I have become incredibly discouraged to the point where it’s been keeping me up at night, and when I do fall asleep I have nightmares about not being able to finish the 10 mile run I have in October. 

Tonight I made the goal to go for a 5k walk, but I hit about 1 1/2 and I had to turn back and head home. I could feel my heart pounding out of my chest and I was in quite a bit of chest pain. I was just so frustrated with myself that I wanted to cry. It is normal for me to be on IV antibiotics to treat my Pseudomonas  every three months and September marks my third month/ I was really hoping that all this exercise would have good impact on my health and help me delay that hospitalization. I am afraid my ambitions were to hopeful and that it may not be the case. 

I am not giving up though, far from it! This is just motivation for me to try harder and keep going! I am sorry it’s been so long since I posted I will start being better about that. I have some cool pictures and a story about the wedding I went to I will share soon. There is actually little about the wedding more about how i got there. It was my first ever train ride! and maybe also my last.

The ride of a life time!

Earlier this week I was granted an opportunity to visit the Michigan International Speedway for a business meeting. I was able to watch a presentation about sponsorship opportunities and with the speedway and one of the racing teams, we also went on a tour of the facility, oh and got to ride around the track with Michael Waltrip. I have to admit I have never been a huge Nascar fan. I love racing but I tend to lean more towards drag racing rather than oval track. Even with my limited Nascar knowledge I knew exactly who Michael Waltrip is.

I was surprised by Michael Waltrips presence, when he arrived at the speedway his people were in the middle of giving a presentation but he decided that he wanted to give a quick word and introduce himself and talk about his Racing team. It was very easy to see the level of respect that he had for his drivers and the employee’s, but the respect they had in return was obvious too. Michael started his speech with a story about his previous day. He was invited to a dirt race the night before over in Winnipeg Canada, he figured that Canada was right on top of Michigan so it would just be a short trip down for the event, well Canada is above a lot of other states too like North Dakota. His short trip turned into a longer one really quick.

It wasn’t long before it was time to hop in the car. Michael Waltrip and Clint Boyer were there to give people an exhilarating ride around the track. I knew right away that I wanted to be in a car with Michael Waltrip, with his reputation and history I knew it would be a memorable and once in a lifetime opportunity.

I have a couple video’s form the experience! One is an in car look and the other is a day at the track overview.

Check out this video to get a quick glimpse at the day!

Check out this video to see what I’m like running around the track.

The car reaches speeds of 165 MPH and we made 3 laps around the track. It was an amazing experience. I was pretty surprised to see a lot of the men and women at the meeting were so nervous and intimidated. Really there isn’t a safer car to be in with all the safety equipment, and a professional driver. I think my history of drag racing gave me a better mental preparation because I wasn’t scared at all, in fact if you watch the video I was ready to go faster.

I couldn’t have been more grateful for this opportunity! I have to send a huge thank you to the Michigan International Speedway for hoisting this event and giving me the opportunity to come out and to the Michael Waltrip racing team for coming all the way out to MIS to give us a great ride! I hope I have the opportunity to do business with both of you in the future.

5K round two!

Last night I went out for my run. I planned on running around 7pm but I didn’t make it out of the house until closer to 7:30. My goal for the evening was to do a 5k. I started off strong in the first 1k of my run, maybe too strong. I was a little more optimistic about how much I could run and over did it a lot, especially int he first 2 kilometers. I am excited to start going farther though with every run! I got some great running advice from a fellow Cystic her name is Emily and she is the main runner and operator for the charity I am working for this year the Rock CF Foundation. She is an amazing athlete and someone I admire very much, having her support and advise is a big motivator for me to keep working hard to fulfill my goals! Her advise to me was to run four days a week alternating days and to work in strength training on the in between days. SO I have been following that method with yesterday being my first full run, on off days I do push ups, crunches and planks. I am not the greatest at actual work outs, so it’s going to take some getting used to, but I know i will get better at it!

Here are the Garmin stats from my 5k yesterday. I am really proud to have my fastest mile to minute yet it’s just under 19 minutes! I need to be at least at 16 for my run in october, and i’m hoping to get it down to 12 for my run in November. It’s not going to be easy, but it’s going to be worth it!

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My goal tomorrow is to do another 5k maybe go a little farther. I don’t want to do to much to fast, and this 5k was pretty exhausting for me. I’ll keep working on it though!
Wish me luck!

 

 

Doctors Appointment update

Yesterday I had a Doctors appointment at the University of Michigan in Ann Arbor. I am kind of sad to report that it didn’t go as well as I had hoped it would. I have been feeling really good since I’ve gotten out of the hospital and i had really anticipated my PFT scores being higher, but all in all nothing really changed. The doctor did take me off IV antibiotics though after being not hem for four weeks he said if I was going to see an improvement it would be there. My weight hasn’t increased at all, and my lugs still have a lot of crackles but the doctor seemed optimistic that getting back into the mode of running would help both of those things out a lot. 

My PFT was at 32% and I am still pretty upset about it. I really thought it was going to be at least in the mid 30’s but it just didn’t work out. 
I have to be honest I am pretty upset and disappointed. I really did everything the doctor wanted me to and I’m just not seeing positive results anymore. I am just not sure what I can do now to get the improvements that I want, and I am beginning to think that they just won’t happen at all.

Cystic Fibrosis is degenerative so I know that it is only going to get worse and at some point I will stop getting better but it is pretty fooling when you feel better but the tests say you aren’t. I just can’t help but question how long it will be before I don’t feel better either. All I can do now is just try to keep a positive outlook.

Wish me luck!

Finally on the mend

It has been a long three days for me. The bad reaction I had to the IV antibiotics got really severe wednesday night, so I contacted my doctor again and he called me in for a last minute appointment yesterday afternoon. After running another PFT and looking over my symptoms and sputum test results he found that there had been no increase in my PFT’s and that I hadn’t really gotten any better over the past week. My most recent sputum test also showed that I have cultured staph in my lungs and given my history or lack of history with Staph the doctor was concerned that there might be more underlying problems that the medications were covering up. The last time I had a staph infection it ended up being in my medical chest port and then went into my blood, which is very dangerous and deadly. It didn’t only make my doctor nervous it made me nervous, so I was admitted into the University of Michigan hospital last night around 8pm.

I may be in the hospital, but with the help of the physical therapists I am back in training mode for the runs in the coming fall. I’m not doing anything drastic though, just a few laps around the floor but that is still more then I have been able to do in weeks. One of my other focuses in the hospital is on gaining weight. I’m currently about 20 lbs underweight, which my doctor isn’t to concerned with saying I will get it back when my health improves.

I am just taking baby steps to get back to a healthy enough place that I can focus on my future goals and ambitions, extending beyond just the runs in the fall.

Wish me luck!